Tuesday, October 22, 2013

That Special Someone

The Kens:  

Found out a couple months ago that Joni Eareckson Tada has a husband. Thought it was kind of cool that his name is Ken as well. They've written a book that I really want to read. It's about their journey as a couple. This article, Ken and Joni, made me cry. There's a section where it talks about her Ken working full time, being exhausted, discouraged and still getting up every night to adjust Joni so she is comfortable. She has a condition that is unusual for quadriplegics that causes excruciating pain. 

What people don't see...he put my veil on me :)

What people see...

My Ken is obviously my special someone. I'm so thankful to have him. He gets up with me in the middle of the night on a regular basis to help me get comfortable or to get my cool wrap (not the chik-fila kind-ah, those are yummy) or meds. He never complains about it. He's A to the awesome!  
Our situations are on two different levels but the love of each Ken is amazing to me. That kind of love doesn't just happen. And it isn't a cake walk. And there is frustration. But because of Jesus' love they can love. 

Lyme of Late:

Lately this disease has been a heavy burden. One minute I'm in "let's do this mode" and the next I'm on the ground thinking, "there's no way I'm getting up." As all my Lyme friends know, it's up and down. I know there are other diseases like that as well. 

We've realized that babesia is my main problem right now. It's a parasite and anit-malarial drugs are the best way to kill the thing. We've tried 3 and they all send me into convulsions because the pain is so bad. The doc put me on a more gentle regimen focusing on detoxing and using a natural supplement, wormwood, to kill the babesia. The recommended dosage is 2 pills twice a day. I'm taking one pill every 3 days and still going into convulsions. Oh boy! Please pray. 



  1. Hi Robin! I've never met you, but I am good friends with Sarah and know the Troutmans. Just wanted to let you know your blog has been great in helping me understand a tiny bit what you and my other friends with Lyme are going through. I am praying for you and Ken!
    ~Janelle Hamel

  2. Hi Janelle! So thankful that it's a help. It's hard to write about it sometimes because the disease makes you draw in. Thanks for dropping a note and for praying for us!

  3. I pay God Covers your body in peace, that your healed by his name by the 32 stripes he took for us....i pray Jesus continue to give Ken the strength of goliath!!!